Tech #1275: Haemophilia Family Impact Tool (H-FIT)

The Haemophilia Family Impact Tool (H-FIT) is a validated, 25-item caregiver-reported measure that captures how caring for a child with haemophilia affects family life, with a focus on treatment burden, worry, and parent knowledge. Developed and validated with parents and healthcare providers across Canada, it helps clinicians track changes in family quality of life as novel therapies emerge, and is available in multiple languages.

Technology Reference Number

#1275

Inventors

Nancy Young, The Hospital for Sick Children

IP&C Contact

Karin Aguilar, Business Development Associate

Therapeutic Area

Hemophilia/Haemophilia

Category

Health Outcome Measure

Keywords

Paediatric haemophilia, Caregiver-reported outcome, H-FIT, Family impact, Health-related quality of life (HRQoL), Treatment burden, Validated clinical tool, Family quality of life

Invention Description

Haemophilia Family Impact Tool (H-FIT)  is a 25-item haemophilia-specific caregiver-reported measure for burden of caring for a child with haemophilia.

Patient-reported outcome measures, in particular health related quality of life (HRQoL), have become increasingly important in haemophilia research to evaluate the impact and efficacy of different treatments. The recognition of the importance of HRQoL in haemophilia research, and the challenges associated with measuring HRQoL in very young children led to the proposal of a different construct to assess HRQoL across the paediatric age span: the impact of haemophilia on the family.

The Haemophilia Family Impact Tool (H-FIT) was developed and validated in a multi-phased approach with parents of boys with haemophilia and haemophilia health-care providers across Canada. Translation and cultural adaptation of the H-FIT is currently ongoing to assess the impact on families in the context of novel, nonfactor therapies.

Advantages

  • Measures how caring for a child with haemophilia affects the family’s daily life
  • Focuses heavily on treatment burden, worry, and parent knowledge
  • The survey helps doctors track how a family’s quality of life changes with new treatments
  • Available in multiple languages

Additional Information

 

Copyright © The Hospital for Sick Children, Dr. Victoria Price and Dr. Nancy Young

 

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